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WFH 2014 World Congress

 

11-15 May 2014 Melbourne
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Discussion forum - WFH 2014 World Congress
    Topic - Psychological and Social Issues

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Poster: 213
Visits: 56
Title: Fathers and Mothers Perceptions and Communication on Carrier Status and Diagnosis of Congenital Haemophilia: Global Results From the Haemophilia Experiences, Results and Opportunities (HERO) Study
Authors: Frederica Cassis , Christine Guelcher, Matt Gregory, Alfonso Iorio
Centre: University of So Paulo Faculty of Medicine Clinics Hospital

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FATHERS AND MOTHERS PERCEPTIONS AND COMMUNICATION ON CARRIER STATUS AND DIAGNOSIS OF CONGENITAL HAEMOPHILIA: GLOBAL RESULTS FROM THE HAEMOPHILIA EXPERIENCES, RESULTS AND OPPORTUNITIES (HERO) STUDY

Frederica cassis
Thread initiator
Subspeciality psychologist
Reg: 6/14/2012 11:02:00 PM
Comment# 1
The Haemophilia Experiences, Results and Opportunities (HERO) initiative aimed to increase the understanding of psychosocial issues impacting people with haemophilia by collaborating with an International Advisory Board that included healthcare providers, patients, and caregivers. As part of the HERO study, parents of children with haemophilia answered questions regarding the communication of carrier status, the impact of a haemophilia diagnosis, and the use of genetic counselling.

Comment added on 4/21/2014 3:35:00 PM 
     
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Most viewed poster for this congress
Poster: 1
Visits: 2526
Title: A WEB SITE TO IMPROVE MANAGEMENT OF PATIENTS WITH INHERITED BLEEDING DISORDERS IN THE EMERGENCY DEPARTMENT: RESULTS AT 2 YEARS
Authors: Annarita Tagliaferri ,
Centre: Centro di Riferimento Regionale per la cura dellEmofilia

Poster most viewed in this topic
Poster: 224
Visits: 214
Title: Hemophilia Social Workers: Roles, Supervision and Support Needs
Authors: Ellen Kachalsky ,
Centre: Henry Ford Health System


 








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